Recent Complex Rehab Technology Advocacy efforts

Traditionally, each fall Complex Rehab Technology (CRT) advocates fly in to Washington, D.C., to educate congressional lawmakers on CRT-related issues. This year, delegations from each state met with healthcare liaisons in a virtual format to discuss their biggest concerns. Each delegation is composed of CRT suppliers, manufacturers and end users.

The Colorado delegation outside Senator Michael Bennet’s office in 2019 (those were the days!)… due to Covid precautions, the 2021 event was held online.

Adequate access to CRT products and supporting services is critical to minimizing health care costs from medical complications and interventions. It is also needed to allow people with disabilities to maximize their independence.

The advocacy program is a collaborative effort between industry stakeholders associated with NCART (National Coalition for Assistive and Rehab Technology) and NRRTS (National Registry of Rehabilitation Technology Suppliers), plus end users affiliated with the #UNITE4CRT project. A consortium of disability organizations also banded together and was represented in the delegations.

This year’s topics included:

• Urging state representatives to sign onto bills ensuring continued funding for CRT and highlighting the importance of funding for new technologies (standing systems, etc.).

• Encouraging the extension of funding for telehealth provided by physical and occupational therapists, which originally came about as a result of the Covid-19 public health emergency, and continues to work well — particularly in rural areas.

• Highlighting the need for federal financial assistance for CRT providers who are constrained by pre‐determined pricing structures that fail to factor in the new operating and cost realities of providing CRT and supplies (provision of Personal Protective Equipment for employees and customers, supply chain challenges, higher product costs, increased freight charges, etc.). Unfortunately, CRT providers do not have the ability to raise prices to cover the increased costs as they are subject to Medicare, Medicaid, and other third‐party payer fee schedules which are typically derived from Medicare rates.

By all accounts, the advocates’ messages were well-received but this is an on-going effort that could benefit from your awareness and input. Check out the resources below for more information.

Recent update (October 2021) from NCART

UNITE4CRT monthly conversation schedule

Educational webinars from CRT Awareness Day events

Kudos to consumer advocate Jenny Siegle

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tomandjenny072820Jenny Siegle was awarded the NRRTS* Consumer Advocate of the Year Award during the Unite4CRT Town Hall Meeting on July 28th.

That masked man in the photo, surprising Jenny while she was hosting the town hall online, is Ride CEO Tom Hetzel. Jenny’s mother, Barb, joined in.

A sports producer and huge Colorado Rockies fan, you may have seen Jenny modeling in some of Ride’s photography over the years or lobbying on Capitol Hill.  She uses a Ride Custom Cushion and Back to support her active lifestyle.

Jenny helped to form the advocacy coalition, Unite4CRT, and has been a driving force in planning the monthly town hall meeting topics and discussions. As host of the meetings, Jenny’s warm and welcoming personality encourages discussion among a diverse audience.

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The group’s mission is to bridge the gap between the perception and the reality of living with a disability. Consider joining their next meeting… information on registering to attend (free) is here.

*NRRTS is the National Registry of Rehabilitation Technology Suppliers

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Just the Facts: Complex Rehab Technology (CRT)

For your reference in advocating for protecting access to equipment for all CRT users, this guide was developed by NRRTS and their CRT user coalition, Unite4CRT. Be sure to contact your member of Congress to ensure that they understand how important CRT is to the independence and health of wheelchair users. Tell your story to bring it home.

Fact Sheet Infographics

Tell your story… help protect access to complex rehab technology (CRT)

The battle continues…

The 25th anniversary of the signing of the Americans with Disabilities Act in 2015 highlighted the continued need to fulfill the promise of that legislation.

Check out this video to review how important it is that Congress and other policy makers take action to protect, not compromise, access to CRT for those who rely on it.

To help advocate for continued access to CRT, visit www.protectmymobility.org.


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Advocacy: join an online town hall meeting

Tuesday, August 13, 2019 at 7pm EST

CRT users are leading the way in efforts to get vital legislation passed that will protect Complex Rehab Technology. Recognizing the need for CRT users to be at the center of advocacy efforts, the new initiative #Unite4CRT was formed.

Led by Kyle Romano, Bobbi Kay Lewis, and Jenny Siegle, #Unite4CRT is asking everyone to join in the first of a series of online meetings. During this session, you’ll be provided with the tools to confidently and comfortably portray CRT’s vital role.

Help make a difference. Learn more here.

“I always wondered why somebody doesn’t do something about that.
Then I realized I was somebody.”
Lily Tomlin

 

Advocacy: It’s never been more important

Funding for complex rehab technology equipment in the US is in jeopardy. It’s important for lawmakers to understand just how critical this equipment is to preserve and enhance health and independence. ADA requirements may be loosened… certainly issues for everyone to be monitoring.

How to get up to speed? One website to get an overview of the issues is that of the National Coalition for Assistive and Rehab Technology.

It’s all about educating those for whom disability issues are a foreign language about the importance of these issues to the disability community. Ride Designs team members were among those who went to Capitol Hill in late April to advocate for complex rehab technology. Earlier this year, we hosted Colorado Senator Michael Bennet at our facility for Small Business Week. The Senator, shown here discussing wheelchair seating with veteran Andrew Kinard, seems open to learning more about both our products and the issues they are meant to resolve.

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You don’t need to travel to Washington to be involved… check out these resources:

• An interesting podcast with panelists speaking about their advocacy efforts has been posted online by United on Wheels.

• The Christopher and Dana Reeve Foundation, which focuses on spinal cord injury advocacy, urges “Lend your voice to our initiatives and you can make a real difference for people living with paralysis, as well as their families and caregivers.”

• Your member of congress is leaving, now what? Mobility Management outlines some ideas about how to how to keep CRT discussions going amid changes in D.C here.

• Visit “Protect My Mobility” regularly to get the latest updates on pending legislation.